Role of the Family and Community Nurse in home dialysis patients and possible effects on healthcare outcomes

Authors

DOI:

https://doi.org/10.33393/gcnd.2022.2478

Keywords:

Community, Dialysis, Family, Home health care nurse

Abstract

From the analysis of the national and international literature and considering the socio-demographic changes, it is necessary to rethink the organizational models capable of giving concrete answers to the new health and welfare needs of the population. The progressive increase of the elderly population and of people with at least one chronic disease and the SARS-CoV-2 pandemic have highlighted the need for a health and social system close to the population, which increases the territorial assistance, in particular at the patient’s home. Home care must become an elective place for prevention and health promotion activities. PNRR funds for proximity networks, telemedicine and innovation in the health field will enable assistance to be directed towards a new organizational and operational perspective, where the family and community nurse will play a key role. In the care of patients on home dialysis the evidence described in the literature reports the benefits of home hemodialysis treatment, in which the nurse of the family and community through his care skills, technical and psychological counselling, tele assistance and e-health can be integrated into the home care path, assisting the patient and the family unit and supporting them in the different health needs, especially in the quality of life outcome.

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References

Decreto del Presidente della Repubblica 7 aprile 2006. Approvazione del «Piano sanitario nazionale» 2006-2008. Online https://www.gazzettaufficiale.it/eli/id/2006/06/17/06A05518/sg (Accessed June 2022)

Conferenza Stato-Regioni. Intesa, ai sensi dell’articolo 8, comma 6, della Legge 5 giugno 2003, n. 131, tra il Governo, le Regioni e le province autonome di Trento e Bolzano concernente il patto per la Salute per gli anni 2019-2021. Online https://www.statoregioni.it/media/4728/p-3-csr-atto-rep-n-40-30mar2022.pdf (Accessed June 2022)

Conferenza Stato-Regioni del 15.09.2016: Accordo tra il Governo, le Regioni e le Province autonome di Trento e di Bolzano sul documento “Piano nazionale della cronicità” di cui all’art. 5, comma 21, dell’Intesa n. 82/CSR del 10 luglio 2014 concernente il nuovo Patto per la Salute per gli anni 2014-2016. (SALUTE). Accordo ai sensi dell’articolo 4, comma 1 del decreto legislativo 28 agosto 1997, n. 281. Online http://www.regioni.it/sanita/2016/09/27/conferenza-stato-regioni-del-15-09-2016-accordo-tra-il-governo-le-regioni-e-le-province-autonome-sul-documento-piano-nazionale-della-cronicita-478007/ (Accessed June 2022)

Piano Nazionale di Ripresa e Resilienza (PNRR). Online https://www.governo.it/sites/governo.it/files/PNRR.pdf. (Accessed June 2022)

Beatrice M, Nicola D, Erica B, Ginetto M, Isabella R. Position Statement infermiere di Famiglia e di Comunità, Roma, luglio 2020, Federazione Nazionale Ordini Professioni Infermieristiche. Online https://www.infermiereonline.org/wp-content/uploads/2020/10/Position-Statement-FNOPI-LInfermiere-di-famiglia-e-di-comunit%C3%A0.pdf (Accessed July 2022)

OECD/EU. Health at a Glance: Europe 2018: State of Health in the EU Cycle. OECD Publishing; 2018.

World Health Organization. THE FAMILY HEALTH NURSE - WHO/Europe. Online https://www.euro.who.int/__data/assets/pdf_file/0004/53860/E92341.pdf (Accessed June 2022)

Gianluca A, Sara B, Sara C, et al. Position paper infermiere di famiglia e di comunità 2019, Torino, Associazione Infermieri di Famiglia e Comunità; 2019. Online https://www.aifec.it/wp-content/uploads/2019/11/Position-Paper-AIFEC-UNITO-UPO-2019.pdf. (Accessed July 2022)

Gazzetta Ufficiale n. 128 del 19 maggio 2020 il Decreto-legge n. 34 “Misure urgenti in materia di salute, sostegno al lavoro e all’economia, nonché di politiche sociali connesse all’emergenza epidemiologica da COVID-19”. Online https://www.gazzettaufficiale.it/eli/id/2020/05/19/20G00052/sg (Accessed June 2022)

Regione Friuli-Venezia Giulia. Infermiere di Famiglia e di Comunità: Tondo, filtro ad accessi al pronto soccorso. Online https://www.regione.fvg.it/rafvg/comunicati/comunicato.act?dir=/rafvg/cms/RAFVG/notiziedallagiunta&nm=20120317084832001 (Accessed June 2022)

Delibera della Giunta Regionale del FVG n° 782, 13 aprile 2006. Online https://www.medicoeleggi.com/argomenti02/fvg/bur/600537.htm (Accessed June 2022)

Legge regionale 17 dicembre 2018, n. 27. Assetto istituzionale e organizzativo del Servizio sanitario regionale. Online https://www.gazzettaufficiale.it/eli/id/2019/05/04/19R00069/s3 (Accessed June 2022)

Legge Regionale Friuli Venezia Giulia 12/12/2019, N. 22. Riorganizzazione dei livelli di assistenza, norme in materia di pianificazione e programmazione sanitaria e sociosanitaria e modifiche alla legge regionale 26/2015 e alla legge regionale 6/2006. Online https://www.gazzettaufficiale.it/atto/regioni/caricaDettaglioAtto/originario?atto.dataPubblicazioneGazzetta=2020-03-07&atto.codiceRedazionale=20R00011 (Accessed June 2022)

CENSIS. Web book welfare e salute. Rapporto CENSIS-FNOPI sugli infermieri e la sanità del futuro. https://www.censis.it/welfare-e-salute/rapporto-censis-fnopi-sugli-infermieri-e-la-sanità-del-futuro/rapporto-censis-fnopi (Accessed June 2022)

World Health Organization. Primary Health Care. https://www.who.int/teams/integrated-health-services/clinical-services-and-systems/primary-care (Accessed June 2022)

Johansen AS, Vracko P, West R. The evolution of community-based primary health care, Slovenia. Bull World Health Organ. 2020;98(5):353-359. PMID:32514200 https://doi.org/10.2471/BLT.19.239616 PMID:32514200 DOI: https://doi.org/10.2471/BLT.19.239616

Watson J. Assistenza infermieristica: filosofia e scienza del caring. Milano: Casa Editrice Ambrosiana, 2013: 28-30.

Rosenfield PL. The potential of transdisciplinary research for sustaining and extending linkages between the health and social sciences. Soc Sci Med. 1992;35(11):1343-1357. https://doi.org/10.1016/0277-9536(92)90038-R PMID:1462174 DOI: https://doi.org/10.1016/0277-9536(92)90038-R

ISTAT popolazione e famiglie https://www.istat.it/it/files/2020/12/C03.pdf (Accessed June 2022)

United Nations. Principles and Recommendations for the 1970 Population Censuses (1969) p. 20. Online. https://unstats.un.org/unsd/demographic-social/Standards-and-Methods/index.cshtml?search=&Id=&Desc=&Title=Principles+and+Recommendations+for+the+1970+Population+Censuses+%281969%29&Year=1969&topics= (Accessed June 2022)

Turner J. Toward a cognitive definition of the group. In: Tajfel H, ed. Social Identity and Intergroup Relations. Cambridge University Press; 1982.

World Health Organization. Health Promotion Glossary 1998. https://www.who.int/publications/i/item/WHO-HPR-HEP-98.1 (Accessed August 2022)

Zito MP, Toschi R. Presa in carico infermieristica nella malattia tenale cronica. G Clin Nefrol Dial 2021; 33: 120-124. https://doi.org/10.33393/gcnd.2021.2326 DOI: https://doi.org/10.33393/gcnd.2021.2326

Kato S, Chmielewski M, Honda H, et al. Aspects of immune dysfunction in end-stage renal disease. Clin J Am Soc Nephrol. 2008;3(5):1526-1533. https://doi.org/10.2215/CJN.00950208PMID:18701615 DOI: https://doi.org/10.2215/CJN.00950208

Quintaliani G, Reboldi G, Di Napoli A, et al; Italian Society of Nephrology COVID-19 Research Group. Exposure to novel coronavirus in patients on renal replacement therapy during the exponential phase of COVID-19 pandemic: survey of the Italian Society of Nephrology. J Nephrol. 2020;33(4):725-736. https://doi.org/10.1007/s40620-020-00794-1 PMID:32621109 DOI: https://doi.org/10.1007/s40620-020-00794-1

Cozzolino M, Conte F, Zappulo F, et al. COVID-19 pandemic era: is it time to promote home dialysis and peritoneal dialysis? Clin Kidney J. 2021;14(suppl 1):i6-i13. https://doi.org/10.1093/ckj/sfab023 PMID:33796282 DOI: https://doi.org/10.1093/ckj/sfab023

Walker RC, Howard K, Morton RL. Home hemodialysis: a comprehensive review of patient-centered and economic considerations. Clinicoecon Outcomes Res. 2017;9:149-161. https://doi.org/10.2147/CEOR.S69340 PMID:28243134 DOI: https://doi.org/10.2147/CEOR.S69340

MacGregor MS, Agar JW, Blagg CR. Home haemodialysis-international trends and variation. Nephrol Dial Transplant. 2006;21(7):1934-1945. https://doi.org/10.1093/ndt/gfl093PMID:16537659 DOI: https://doi.org/10.1093/ndt/gfl093

Cherukuri S, Bajo M, Colussi G, et al. Home hemodialysis treatment and outcomes: retrospective analysis of the Knowledge to Improve Home Dialysis Network in Europe (KIHDNEy) cohort. BMC Nephrol. 2018;19(1):262. https://doi.org/10.1186/s12882-018-1059-2PMID:30314451 DOI: https://doi.org/10.1186/s12882-018-1059-2

Liyanage T, Ninomiya T, Jha V, et al. Worldwide access to treatment for end-stage kidney disease: a systematic review. Lancet. 2015;385(9981):1975-1982. https://doi.org/10.1016/S0140-6736(14)61601-9 PMID:25777665 DOI: https://doi.org/10.1016/S0140-6736(14)61601-9

Nesrallah GE, Lindsay RM, Cuerden MS, et al. Intensive hemodialysis associates with improved survival compared with conventional hemodialysis. J Am Soc Nephrol. 2012;23(4):696-705. https://doi.org/10.1681/ASN.2011070676 PMID:22362910 DOI: https://doi.org/10.1681/ASN.2011070676

Jefferies HJ, Virk B, Schiller B, Moran J, McIntyre CW. Frequent hemodialysis schedules are associated with reduced levels of dialysis-induced cardiac injury (myocardial stunning). Clin J Am Soc Nephrol. 2011;6(6):1326-1332. https://doi.org/10.2215/CJN.05200610 PMID:21597028 DOI: https://doi.org/10.2215/CJN.05200610

Foley RN, Gilbertson DT, Murray T, Collins AJ. Long interdialytic interval and mortality among patients receiving hemodialysis. N Engl J Med. 2011;365(12):1099-1107. https://doi.org/10.1056/NEJMoa1103313 PMID:21992122 DOI: https://doi.org/10.1056/NEJMoa1103313

Walker RC, Hanson CS, Palmer SC, et al. Patient and caregiver perspectives on home hemodialysis: a systematic review. Am J Kidney Dis. 2015;65(3):451-463. https://doi.org/10.1053/j.ajkd.2014.10.020 PMID:25582285 DOI: https://doi.org/10.1053/j.ajkd.2014.10.020

Linn MW, Sandifer R, Stein S. Effects of unemployment on mental and physical health. Am J Public Health. 1985;75(5):502-506. https://doi.org/10.2105/AJPH.75.5.502 PMID:3985238 DOI: https://doi.org/10.2105/AJPH.75.5.502

Sheeran P, Abraham C. Unemployment and self-conception: A symbolic interactionist analysis. J Community Appl Soc Psychol. 1994;4(2):115-129. https://doi.org/10.1002/casp.2450040205 DOI: https://doi.org/10.1002/casp.2450040205

Curtin RB, Oberley ET, Sacksteder P, Friedman A. Differences between employed and nonemployed dialysis patients. Am J Kidney Dis. 1996;27(4):533-540. https://doi.org/10.1016/S0272-6386(96)90164-X PMID:8678064 DOI: https://doi.org/10.1016/S0272-6386(96)90164-X

Kutner N, Bowles T, Zhang R, Huang Y, Pastan S. Dialysis facility characteristics and variation in employment rates: a national study. Clin J Am Soc Nephrol. 2008;3(1):111-116. https://doi.org/10.2215/CJN.02990707 PMID:18178781 DOI: https://doi.org/10.2215/CJN.02990707

Tong A, Palmer S, Manns B, et al. The beliefs and expectations of patients and caregivers about home haemodialysis: an interview study. BMJ Open. 2013;3(1):e002148. https://doi.org/10.1136/bmjopen-2012-002148 PMID:23355670 DOI: https://doi.org/10.1136/bmjopen-2012-002148

Young BA, Chan C, Blagg C, et al; ASN Dialysis Advisory Group. How to overcome barriers and establish a successful home HD program. Clin J Am Soc Nephrol. 2012;7(12):2023-2032. https://doi.org/10.2215/CJN.07080712 PMID:23037981 DOI: https://doi.org/10.2215/CJN.07080712

Trinh E, Chan CT. The Rise, Fall, and Resurgence of Home Hemodialysis. Semin Dial. 2017;30(2):174-180. https://doi.org/10.1111/sdi.12572 PMID:28066912 DOI: https://doi.org/10.1111/sdi.12572

Cornelis T, Kotanko P, Goffin E, van der Sande FM, Kooman JP, Chan CT. Intensive hemodialysis in the (nursing) home: the bright side of geriatric ESRD care? Semin Dial. 2012;25(6):605-610. https://doi.org/10.1111/sdi.12011 PMID:23078750 DOI: https://doi.org/10.1111/sdi.12011

Qyinan P. Home hemodialysis and the caregivers’ experience: a critical analysis. CANNT J. 2005;15(1):25-32. PMID:15909774

Srivatana V, Liu F, Levine DM, Kalloo SD. Early Use of Telehealth in Home Dialysis during the COVID-19 Pandemic in New York City. Kidney360. 2020;1(6):524-526. https://doi.org/10.34067/KID.0001662020 PMID:35368586 DOI: https://doi.org/10.34067/KID.0001662020

Ministero della Salute. Circolare del 22 aprile 2020 “Prevenzione COVID-19: implementazione dialisi domiciliare e peritoneale per i pazienti attualmente in emodialisi extracorporea”. https://sinitaly.org/wp-content/uploads/2020/04/MinisteroSalute-NOTA-X-ASSESSORI-prot.pdf (Accessed June 2022)

Published

2022-11-07

How to Cite

Burrai, F., Gambella, M., & Micheluzzi, V. (2022). Role of the Family and Community Nurse in home dialysis patients and possible effects on healthcare outcomes. Giornale Di Clinica Nefrologica E Dialisi, 34(1), 80–86. https://doi.org/10.33393/gcnd.2022.2478
Received 2022-07-29
Accepted 2022-10-06
Published 2022-11-07

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