Charter of the rights of the person with kidney disease

Authors

  • Roberto Costanzi Associazione Malati di Reni onlus - Forum Nazionale Associazioni Trapiantati, Roma
  • Franco Brizzi Associazione Nazionale Trapiantati di Rene onlus (ANTR), Latina
  • Giuseppe Iacovelli Associazione Nazionale Trapiantati di Rene onlus (ANTR), Latina
  • Alessandra Nunzi Associazione Nazionale Dialisi Peritoneale “Enzo Siciliano” onlus (ANDiP), Roma
  • Gaspare Elios Russo Associazione Nazionale Dialisi Peritoneale “Enzo Siciliano” onlus (ANDiP), Roma
  • Anna Viola Associazione Nazionale Emodializzati Dialisi e Trapianto onlus (ANED), Roma
  • Teresa Petrangolini Esperta di advocacy - Consigliere regionale del Lazio, Roma
  • Francesca Diamanti Psicologa formatrice, Roma
  • Gianna d’Adamo Associazione Malati di Reni onlus - Forum Nazionale Associazioni Trapiantati, Roma

DOI:

https://doi.org/10.33393/gcnd.2015.802

Keywords:

Chronic kidney disease, Patients' rights, Chronic Care Model

Abstract

Charter of rights of people with kidney disease Associations of social utility operating in the field of Chronic Kidney Disease (CKD) in the Region of Lazio carried out a course for the training and retraining of people who perform or intend to play an active role within the Associations. With the scientific direction of an expert in advocacy, lectures and active training were integrated to provide knowledge and skills to interact constructively with health professionals and Institutions. At the end of the course, the participants jointly formulated and approved the “Charter of rights of people with kidney disease” which is presented in this article. The Charter refers explicitly to the European Charter of Patients' Rights and is proposed as a tool to improve the quality of life of people with CKD. We hope that the Charter will be adopted by other Associations and implemented by the Institutions.

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