Rene Policistico e trapianto di rene: accesso alla lista d’attesa e post trapianto: risultati della ricerca

Autori

  • Rossana Caldara Medicina Interna e dei Trapianti, Ospedale San Raffaele, Milano, Italy

DOI:

https://doi.org/10.33393/gcnd.2019.536

Parole chiave:

ADPKD, Patient journey, Kidney transplantation, ESRD, Transplant Centers

Abstract

Autosomal-dominant polycystic kidney disease (ADPKD) is the leading genetic cause of end-stage renal disease (ESRD) worldwide. The number of ADPKD patients who are listed for transplantation or receive a kidney transplant is continuously increasing over time. AIRP conducted a survey to investigate the ADPKD patient journey, meaning the personal experience and expectations of people regarding kidney transplantation as therapeutic option of end-stage renal failure. The survey was conducted on 381 people with ADPKD, using computer-assisted web interviewing (CAWI). The results confirm that there are problems that need to be addressed before listing an ADPKD patient for a kidney transplantation, namely the patient’s comorbidities, the complexity of pre-transplant assessments and the shortage of organs. Pre-emptive transplantation from cadaver donor is a rare event in our country but it is a valid option, especially in case of living donation. Immunosuppression is well tolerated in a high percentage of subjects, but a follow-up is necessary to monitor negative side effects. Despite these problems, the outcome of kidney transplantation is optimal in these patients. Also, the relationship between patients and Nephrologists and/or Transplant Centers is important to ensure a positive outcome.

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Pubblicato

2019-09-23

Come citare

1.
Caldara R. Rene Policistico e trapianto di rene: accesso alla lista d’attesa e post trapianto: risultati della ricerca. G Clin Nefrol Dial [Internet]. 23 settembre 2019 [citato 15 ottobre 2021];31(3):176-82. Available at: https://journals.aboutscience.eu/index.php/gcnd/article/view/536

Fascicolo

Sezione

Il rene policistico - In collaborazione con AIRP